That ‐ in short ‐ was what my doctor told me when I was diagnosed with Motor Neurone Disease just weeks ago.
It's not the news you expect when you are 29 years old.
Motor Neurone Disease (or MND) is a rare, progressive and debilitating disease that attacks the brain and spinal cord. It leads to weakness and muscle wasting and will affect how I walk, talk, eat and breathe. There is no cure.
Soon it will kill me.
I don't want pity. All I want is for you to take action to help fund a cure and fight for better care for people with MND.
It'll be too late for me, but we must ‐ and with your help we will ‐ find a cure for the next generation.
With your help I can turn a negative into a positive.
Thank you for your support, Gordon
Here's five things the Scottish and UK Government's could do right now to help fund a cure and improve the care provided to MND patients:
Double MND research funding
Pay MND nurses from the public purse
Double the number of MND nurses
Imagine losing your voice, forever. For me that's scarily likely — My #MNDiaries on my biggest fear & what needs done http://t.co/7Y1VWaG4Zi
Sunday, May 24th, 4:22 PM
Thanks for warm response, @ShonaRobison. Nobody should die without a voice. Have emailed. Lets meet & get sorted #MND http://t.co/hs4hqb0d8p
Sunday, May 24th, 2:17 PM
Wow... I could use one of these! #MND https://t.co/zPn6TnEY3r
Sunday, May 24th, 12:57 PM