That ‐ in short ‐ was what my doctor told me when I was diagnosed with Motor Neurone Disease just weeks ago.
It's not the news you expect when you are 29 years old.
Motor Neurone Disease (or MND) is a rare, progressive and debilitating disease that attacks the brain and spinal cord. It leads to weakness and muscle wasting and will affect how I walk, talk, eat and breathe. There is no cure.
Soon it will kill me.
I don't want pity. All I want is for you to take action to help fund a cure and fight for better care for people with MND.
It'll be too late for me, but we must ‐ and with your help we will ‐ find a cure for the next generation.
With your help I can turn a negative into a positive.
Thank you for your support, Gordon
Here's five things the Scottish and UK Government's could do right now to help fund a cure and improve the care provided to MND patients:
Double MND research funding
Pay MND nurses from the public purse
Double the number of MND nurses
It's time our parliament reflected all: that means 1 in 5 disabled people — My #MNDiaries in today's @SundayTimesScot http://t.co/YnkaTIY7ke
Sunday, April 19th, 10:57 AM
RT @SundayTimesSco: Politicians should represent all of us, not just able-bodied - latest @GordonAikman MotorNeuroneDiaries in @SundayTimes…
Sunday, April 19th, 10:17 AM
RT @DerrenBrown: Do support Broadchurch babe @JonnyBailey in his marathon run for MND: http://t.co/MZrI16Xpxu. Thanking you.
Saturday, April 18th, 5:04 PM