That ‐ in short ‐ was what my doctor told me when I was diagnosed with Motor Neurone Disease.
It's not the news you expect when you are 29 years old.
Motor Neurone Disease (or MND) is a progressive and debilitating disease that attacks the brain and spinal cord. It leads to weakness and muscle wasting and will affect how I walk, talk, eat and breathe. There is no cure.
Soon it will kill me.
I don't want pity. All I want is for you to take action to help fund a cure and fight for better care for people with MND.
It'll be too late for me, but we must ‐ and with your help we will ‐ find a cure for the next generation.
With your help I can turn a negative into a positive.
Thank you for your support, Gordon
Here's six things the Scottish and UK Government can do to help find a cure and transform care for MND patients:
Double MND research funding
Outlaw care charges
Pay MND nurses from the public purse
Double the number of MND nurses
Guarantee MND patients a voice
#MND ain't funny... but these guys are! #lolzforacure #EdFringe, 10 Aug. Tickets: http://t.co/U5UC9TolPP ★★★★★ — Me http://t.co/aoxKdsCdYZ
Wednesday, July 29th, 6:03 PM
RT @sohotheatre: So 10 Aug @edfringe is THIS great thing, hosted by Kitson & feat. Soho Theatre chums Tony Law, Stewart Francis etc http://…
Wednesday, July 29th, 5:35 PM
BIG thanks to my MP & MPs from all parties backing our call to DOUBLE #MND research funding :) http://t.co/FU5nV0n2X9 http://t.co/R66DInE8sI
Tuesday, July 28th, 3:54 PM