That ‐ in short ‐ was what my doctor told me when I was diagnosed with Motor Neurone Disease.
It's not the news you expect when you are 29 years old.
Motor Neurone Disease (or MND) is a progressive and debilitating disease that attacks the brain and spinal cord. It leads to weakness and muscle wasting and will affect how I walk, talk, eat and breathe. There is no cure.
Soon it will kill me.
I don't want pity. All I want is for you to take action to help fund a cure and fight for better care for people with MND.
It'll be too late for me, but we must ‐ and with your help we will ‐ find a cure for the next generation.
With your help I can turn a negative into a positive.
Thank you for your support, Gordon
Here are seven things the Scottish and UK Government can do to help find a cure and transform care for MND patients:
Pay MND nurses from the public purse
Double the number of MND nurses
Guarantee MND patients a voice
Pay carers a Living Wage
Double MND research funding
Outlaw care charges
RT @oneinfivescot: .@STVNews write-up on our Accessible Manifesto Report Card inc political party reaction #AccessPolitics https://t.co/S3N…
Thursday, April 28th, 3:29 PM
RT @Waterstones_Edi: TONIGHT at 6.30PM @joepike will be here talking #ProjectFear. Free tickets in-store. See you later! https://t.co/sQqIO…
Thursday, April 28th, 2:50 PM
RT @MNDScotland: Great to have support from @ScottishLabour including commitment to funding #MND research in their #SP16 manifesto. https:/…
Wednesday, April 27th, 5:26 PM