That ‐ in short ‐ was what my doctor told me when I was diagnosed with Motor Neurone Disease just weeks ago.
It's not the news you expect when you are 29 years old.
Motor Neurone Disease (or MND) is a rare, progressive and debilitating disease that attacks the brain and spinal cord. It leads to weakness and muscle wasting and will affect how I walk, talk, eat and breathe. There is no cure.
Soon it will kill me.
I don't want pity. All I want is for you to take action to help fund a cure and fight for better care for people with MND.
It'll be too late for me, but we must ‐ and with your help we will ‐ find a cure for the next generation.
With your help I can turn a negative into a positive.
Thank you for your support, Gordon
Here's five things the Scottish and UK Government's could do right now to help fund a cure and improve the care provided to MND patients:
Double MND research funding
Pay MND nurses from the public purse
Double the number of MND nurses
.@JamesEatsLots Online http://t.co/63sqPOjnII & in Scotland print edition. Hopefully in @thesundaytimes UK & Ireland editions in future :)
Sunday, January 25th, 4:45 PM
Which party — @Conservatives @UKLabour @LibDems @theSNP — will promise to double #MND research funding first? Pls RT http://t.co/w4VGYrWbsi
Sunday, January 25th, 3:14 PM
Superb! RT @TheScotsman: @CelticFC donate £10,000 to #MND and @FernandoRicksen http://t.co/mTZ7cbVgo4 http://t.co/Y3A7WYEtaA
Sunday, January 25th, 12:28 PM