That ‐ in short ‐ was what my doctor told me when I was diagnosed with Motor Neurone Disease.
It's not the news you expect when you are 29 years old.
Motor Neurone Disease (or MND) is a progressive and debilitating disease that attacks the brain and spinal cord. It leads to weakness and muscle wasting and will affect how I walk, talk, eat and breathe. There is no cure.
Soon it will kill me.
I don't want pity. All I want is for you to take action to help fund a cure and fight for better care for people with MND.
It'll be too late for me, but we must ‐ and with your help we will ‐ find a cure for the next generation.
With your help I can turn a negative into a positive.
Thank you for your support, Gordon
Here are seven things the Scottish and UK Government can do to help find a cure and transform care for MND patients:
Pay MND nurses from the public purse
Double the number of MND nurses
Guarantee MND patients a voice
Pay carers a Living Wage
Double MND research funding
Outlaw care charges
Thursday, January 12th, 9:39 PM
.@MNDScotland @niamhcallan88 - 'Lagavulin and Talisker' - Love. It.
Thursday, January 12th, 1:48 PM
@RupertMyers Handy for people not so handy with their hands i.e. me
Tuesday, January 10th, 8:48 PM